Month: January 2019

It has been pretty routine here lately. No issues have surfaced. Boring is always good.

This week I travel to MSK for a blood draw and check-up with my transplant doctor. Hopefully I will get more detailed information on the results of my last biopsy. I am also curious on whether I have any new t-cells starting to show up.

Last week I completed my maintenance shot cycle. Still no major side effects which is always good. I am still waiting for the detailed results of my last biopsy. I probably won’t hear anything for at least another week.

During this time of the year I reflect daily upon the fact that one year ago I was in the hospital recovering from my first chemotherapy session after being diagnosed. During that time I spent approximately 5 weeks in the hospital, confined to the same hospital room and floor. For someone who enjoys the outdoors that required some mental endurance. You gotta be appreciative and grateful for the little things in life.

The initial results of my bone marrow biopsy from last week are good – no signs of leukemia. It will take more time to receive detailed results such as what percent donor I am, etc. I am still amazed as to how much better I feel now as compared to a year ago.

This week I started my fifth maintenance cycle of azaciditine shots. By now the side effects are minimal. Even the shot locations don’t seem as sore as before. My EBV level continues to be negligible as well.